Rare diseases - updates

Rappler's latest stories on Rare diseases


Gene therapies are proving their worth, but with million dollar price tags, it's not clear who should pay for them

Mar 31, 2018 - 10:00 AM

Is witnessing a starry night worth an eye-watering $425,000 per eye?

GENE THERAPY. Gene therapies became a clinical reality in 2017. Festa/Shutterstock

Expert warns vs wild claims linked to Dengvaxia

Feb 05, 2018 - 4:57 PM

The Public Attorney's Office files a civil case demanding damages amounting to P4 million against former health officials, along with officials of Sanofi Pasteur and distributor Zuellig Pharma

DENGVAXIA. PAO's forensics head Erwin Erfe says a 10-year-old vaccinated child was found with signs of the rare vaccine-related viscerotropic disease during a press conference on February 5, 2018. Photo by Lian Buan/Rappler

House OKs comprehensive policy for patients with rare diseases

Sep 03, 2015 - 6:16 PM

WHO says there are 7 000 known rare diseases in the world with up to 70 affecting children In PH a disease is considered rare when it affects one patient in every 20 000 population

Me, 'orphan' diseases, and Capiz

Apr 03, 2015 - 7:00 AM

In Capiz people with XDP are often mistakenly thought of as aswangs Learn about the truth behind orphan diseases like XDP

Rare Pairs: A charity dinner for orphan disorders

Nov 19, 2014 - 3:04 PM

With the lack of support from the government it is our responsibility as private citizens to contribute and support this ignored sector of our society

'Ice Bucket Challenge' passes $100-M mark

Aug 30, 2014 - 8:02 AM

Between July 29 and August 29 100 9 million had been raised in donations compared with 2 8 million during the same period last year

Angara bill to help patients with ALS, rare diseases

Aug 28, 2014 - 4:56 PM

Aside from filing the bill Senator Sonny Angara also accepts the ALS ice bucket challenge

A fighting chance for patients with rare diseases

May 08, 2014 - 9:42 PM

In the Philippines those who suffer from rare diseases depend on government for their expensive treatment Lawmakers are trying to address the patients needs further

DREAM: DOCTOR. Patients like Ziv Morejon (R) who are diagnosed with rare diseases can also enjoy a decent quality of life if the right support system is in place. Photo by Jee Geronimo/Rappler