Rappler's latest stories on Rare diseases
Gene therapies are proving their worth, but with million dollar price tags, it's not clear who should pay for them
Is witnessing a starry night worth an eye-watering $425,000 per eye?
Expert warns vs wild claims linked to Dengvaxia
The Public Attorney's Office files a civil case demanding damages amounting to P4 million against former health officials, along with officials of Sanofi Pasteur and distributor Zuellig Pharma
House OKs comprehensive policy for patients with rare diseases
WHO says there are 7 000 known rare diseases in the world with up to 70 affecting children In PH a disease is considered rare when it affects one patient in every 20 000 population
Me, 'orphan' diseases, and Capiz
In Capiz people with XDP are often mistakenly thought of as aswangs Learn about the truth behind orphan diseases like XDP
Rare Pairs: A charity dinner for orphan disorders
With the lack of support from the government it is our responsibility as private citizens to contribute and support this ignored sector of our society
'Ice Bucket Challenge' passes $100-M mark
Between July 29 and August 29 100 9 million had been raised in donations compared with 2 8 million during the same period last year
Angara bill to help patients with ALS, rare diseases
Aside from filing the bill Senator Sonny Angara also accepts the ALS ice bucket challenge
A fighting chance for patients with rare diseases
In the Philippines those who suffer from rare diseases depend on government for their expensive treatment Lawmakers are trying to address the patients needs further
